I have FIVE women in my family (myself, my sister, and three cousins) that are/have been breast cancer patients, and all of us are BRCA negative. For the longest time I've thought, "Surely this gene is in my family". Surely, I must be right. I researched BRCA and decided to share with you what I found because I believe everyone should understand the results.
A negative BRCA test result means that you do not have a detectable mutation (gene) in BRCA1 or BRCA2. Sometimes, there is a known BRCA mutation in other family members, and it is referred to as a ‘true negative’. This means the gene causing the cancer in your family has been identified and you do not carry the same mutation. What does it mean to you? It only means that your negative result reflects it is unlikely that you carry a BRCA1/2 mutation.
Statistics show that approximately 12% of all high-risk people have a BRCA1/2 mutation that is not identified yet, so it’s missed by the test. Genetic testing is not yet perfect and current techniques cannot “read” the gene/DNA completely.
It is also possible that you are not the right person in the family to have this test, so if you tested negative it may be necessary to look at your family and determine whether it might be more appropriate to test someone else. Both myself and my sister have taken this test and we are negative yet we are both triple negative breast cancer survivors.
On the other end of this is the question, what doesn’t the negative test result mean?
It doesn’t mean you don’t have a gene mutation. You could still be at an increased risk for cancer because you might actually have a BRCA1/2 mutation, it just hasn’t been identified yet. Also, the negative test result does not mean that you cannot get cancer. And it doesn't mean you can stop visiting your doctor. You should continue to follow up with your specialists and take your health seriously.
When I had my test, I considered it to be a preemptive strike against my cancer. If I had/or didn’t have the mutation, at least I was aware of the results and could move forward in an educated manner. I will not take this cancer lying down…unless I have just awakened from another surgery……I will become as educated as possible, from reputable doctors and hospitals that I trust.
Genetic testing is getting better and better each day and the medical community is making leaps and bounds strides against breast cancer. BRCA is the current test, and hopefully one day soon, a more predictable accurate test will be available that can identify every mutant gene. Until then, stay educated and know your body and your disease. Hugs.
Monday, May 16, 2011
Saturday, April 30, 2011
A "God Week"
There have been all kinds of things happening this week, so I decided I would call it a "God-week"....his reminder that HE is in charge - not us.
In the last 7-10 days, areas from Kansas to Ohio and Texas to Georgia have been pummeled with rain, flooding, and tornado's. People are losing all the material things they have worked so hard for - and some of their most prized possessions.... loved ones. Tuscaloosa and Birmingham, AL, my Army home for six years, was torn to shreds in EF4 and EF5 tornado's. This pains me as I watch the people look for their loved ones, their pets, and pieces of what may be left of their homes. My heart truly aches to see anyone feel such great loss.
My cousin is making her way through the beginning stages of her breast cancer experience and I pray for her daily, to receive good care from the doctors, and mercy from God. And my friend Debbie, well, she is not so good. She is in the last stages and is now with hospice, and back in the hospital with a signed DNR. She has a tube running through her nose into her stomach to drain the fluids that have built up. I could feel the tears as I left her bedside. I don't know if that is the last time I will see my friend or not.
On a spirited note, this morning, I went for my Graduate photo's. I will finally graduate this coming month and I am thrilled, however, it is overshadowed by the things going on around me. And that is very much ok - so many others are in such great need. Lord, give them strength....
We should all say this: "Yea, though I walk through the valley of the shadow of death, I shall fear no evil, for thou art with me; thy rod and staff, they comfort me." I don't know what HIS plans are, but I must trust they are good and our lives were planned for us long before we entered this life.
I know that my own journey with breast cancer has been quite a haul. There were days that I wasn't so sure I would make it and sometimes, like this morning, I feel guilty. Days when my body hurt everywhere, and I looked just awful (to me)... and I was hit by a car, and got the flu....and the list goes on and on....but I never gave up. On the contrary, I would look up and just say, "Really?? Come on, give me a break." Now, I just want to say, "Give them a break."
If you are entering into a journey of your own with cancer, you set your pace between you and God. Trust HIM to get you to where you are supposed to be. I can only say that of all times when I should have lost faith in everything, I found it and found myself, and remembered that family, faith, and love is what living is really all about.
In this "God-week" of turbulent times, hug your loved ones a little closer, smell your child's clean hair, sit by the beach and let the sun warm your skin, or just sit quietly and listen for God. HE is there, watching, waiting, and carrying you just when you will need him most. And, if you can't hear him - call me....he might be a little busy.....
Much love....
In the last 7-10 days, areas from Kansas to Ohio and Texas to Georgia have been pummeled with rain, flooding, and tornado's. People are losing all the material things they have worked so hard for - and some of their most prized possessions.... loved ones. Tuscaloosa and Birmingham, AL, my Army home for six years, was torn to shreds in EF4 and EF5 tornado's. This pains me as I watch the people look for their loved ones, their pets, and pieces of what may be left of their homes. My heart truly aches to see anyone feel such great loss.
My cousin is making her way through the beginning stages of her breast cancer experience and I pray for her daily, to receive good care from the doctors, and mercy from God. And my friend Debbie, well, she is not so good. She is in the last stages and is now with hospice, and back in the hospital with a signed DNR. She has a tube running through her nose into her stomach to drain the fluids that have built up. I could feel the tears as I left her bedside. I don't know if that is the last time I will see my friend or not.
On a spirited note, this morning, I went for my Graduate photo's. I will finally graduate this coming month and I am thrilled, however, it is overshadowed by the things going on around me. And that is very much ok - so many others are in such great need. Lord, give them strength....
We should all say this: "Yea, though I walk through the valley of the shadow of death, I shall fear no evil, for thou art with me; thy rod and staff, they comfort me." I don't know what HIS plans are, but I must trust they are good and our lives were planned for us long before we entered this life.
I know that my own journey with breast cancer has been quite a haul. There were days that I wasn't so sure I would make it and sometimes, like this morning, I feel guilty. Days when my body hurt everywhere, and I looked just awful (to me)... and I was hit by a car, and got the flu....and the list goes on and on....but I never gave up. On the contrary, I would look up and just say, "Really?? Come on, give me a break." Now, I just want to say, "Give them a break."
If you are entering into a journey of your own with cancer, you set your pace between you and God. Trust HIM to get you to where you are supposed to be. I can only say that of all times when I should have lost faith in everything, I found it and found myself, and remembered that family, faith, and love is what living is really all about.
In this "God-week" of turbulent times, hug your loved ones a little closer, smell your child's clean hair, sit by the beach and let the sun warm your skin, or just sit quietly and listen for God. HE is there, watching, waiting, and carrying you just when you will need him most. And, if you can't hear him - call me....he might be a little busy.....
Much love....
Thursday, April 21, 2011
Time Flies - Easter Message
It has been some time since my last post and I have been very busy. My oncologist has finally allowed me to go 6 months in between appointments, and my reconstruction specialists are about done. The only thing left to do is paint a pretty picture, if you know what I mean (color them in).
I've been doing well taking vitamins regularly with minerals to help support and sustain that which my body needs. I have also taken my awareness to a heightened level where stress is concerned. I do not want to become very stressed out any more as a part of me believes that for so long I lived that way. Now, I let go and let God as much as I possibly can. At least I'm trying...the fates test me regularly.
Too many classes and two thesis' later, I will graduate with a Dual Master's degree, with Honors, on May 7th. Throughout all the chaos of the last two plus years, I continued my education. Mostly, to show my children that they can do anything they set their hearts and minds to do regardless of the situation. It has been a very challenging and difficult time as my mind has wandered all too often, compliments of chemo I'm sure. I've been lucky in that my instructors have allowed me to use my laptop when my hands and bones hurt, and notes at critical pathways that would help ensure my success. I thank them all genuinely for their patience and support. I hope to become a successful and compassionate college instructor myself after graduation.
Just recently, I learned that my cousin has been diagnosed with Stage II IDC. I remember that awful gut wrenching feeling of not knowing what really lies ahead. Not being in control. Cancer sure has a way of reminding us what humility is. She is a strong woman though with a strong family and friends network, and I believe that she will come through this just fine.
As a young girl, a few years her junior, I always looked up to her. She was tall and beautiful, and a model. And she had this infectious laugh that could make a whole room laugh. And she did, and still does. I still remember my dad saying something to her that made her blush 50 shades of red and the family roared with laughter. Carolyn, you are still beautiful, and regardless of what you choose to do, you will STILL be beautiful when your treatment is over. The good Lord knows what he is doing. Keep the faith cousin, and remember what your knees are really for. HE will carry you as he has promised. For my friends, please say a special prayer for her.
Now on to a special sermon of sorts. With Easter on our door steps, may you all be gently reminded of what Easter is really all about - the resurrection of Jesus Christ. It is a time to celebrate HIS victory over death and man's hope for eternal life.
Before His death, Jesus had promised eternal life to those who followed Him. That Jesus rose from death reflected his infinite power. And ever since I was a little girl, the one message that has been said over and over and over again....is that Jesus said, "For God so loved the world that He gave his only begotten Son, that whosoever believeth in Him shall not perish but have everlasting eternal life." (John 3:16).
This Easter, wherever you are, I wish you hope, peace, and love. Always.
Hugs.
I've been doing well taking vitamins regularly with minerals to help support and sustain that which my body needs. I have also taken my awareness to a heightened level where stress is concerned. I do not want to become very stressed out any more as a part of me believes that for so long I lived that way. Now, I let go and let God as much as I possibly can. At least I'm trying...the fates test me regularly.
Too many classes and two thesis' later, I will graduate with a Dual Master's degree, with Honors, on May 7th. Throughout all the chaos of the last two plus years, I continued my education. Mostly, to show my children that they can do anything they set their hearts and minds to do regardless of the situation. It has been a very challenging and difficult time as my mind has wandered all too often, compliments of chemo I'm sure. I've been lucky in that my instructors have allowed me to use my laptop when my hands and bones hurt, and notes at critical pathways that would help ensure my success. I thank them all genuinely for their patience and support. I hope to become a successful and compassionate college instructor myself after graduation.
Just recently, I learned that my cousin has been diagnosed with Stage II IDC. I remember that awful gut wrenching feeling of not knowing what really lies ahead. Not being in control. Cancer sure has a way of reminding us what humility is. She is a strong woman though with a strong family and friends network, and I believe that she will come through this just fine.
As a young girl, a few years her junior, I always looked up to her. She was tall and beautiful, and a model. And she had this infectious laugh that could make a whole room laugh. And she did, and still does. I still remember my dad saying something to her that made her blush 50 shades of red and the family roared with laughter. Carolyn, you are still beautiful, and regardless of what you choose to do, you will STILL be beautiful when your treatment is over. The good Lord knows what he is doing. Keep the faith cousin, and remember what your knees are really for. HE will carry you as he has promised. For my friends, please say a special prayer for her.
Now on to a special sermon of sorts. With Easter on our door steps, may you all be gently reminded of what Easter is really all about - the resurrection of Jesus Christ. It is a time to celebrate HIS victory over death and man's hope for eternal life.
Before His death, Jesus had promised eternal life to those who followed Him. That Jesus rose from death reflected his infinite power. And ever since I was a little girl, the one message that has been said over and over and over again....is that Jesus said, "For God so loved the world that He gave his only begotten Son, that whosoever believeth in Him shall not perish but have everlasting eternal life." (John 3:16).
This Easter, wherever you are, I wish you hope, peace, and love. Always.
Hugs.
Wednesday, February 2, 2011
Making a Survivor Care Plan (as read in New Connections)
I recently read that every cancer patient should have a survivor care plan, and after reading the article, I agree. Because I think it is SO important, I’ve copied much of the article for you here so that you can read it for yourself. If you would like to see the entire article, please go to the New Connections site of the American Cancer Society.
A survivor care plan is really a record of your cancer care that can help you monitor and maintain your health long after treatment ends. Your plan doesn't need to be complicated; in fact, it can start with a simple pen-and-paper list of information. At its most basic, your plan should include:
• The date of your diagnosis and the medical name of your cancer, along with a pathology report of any biopsies you had
• The name of the medical professionals who cared for you, including the doctor who diagnosed you and the doctors in charge of your treatments
• The type or types of treatment you received, as well as any potential side effects or long-term risks of that treatment
• If you had chemotherapy, the dates of your treatments, names and total dosage of the drugs
• If you had radiation, the dates of your treatments and the total dosage of radiation
• If you had surgery, the dates of your surgery and the names of the medical professionals who performed the operation
• Any complications you had from the cancer treatments or surgeries
• A list of any follow-up visits and the results of any tests conducted during those visits
You may have to go to different sources to get this information, but you should get it soon after treatment ends. Some doctors and hospitals are now helping patients create survivor care plans as they reach the end of cancer treatment. If you're working with your health care team, your plan may also include:
• Contact information for support groups
• Other support resources
• Tips for living a healthy lifestyle to reduce your risk of cancer recurrence or new cancers
• A schedule for screening for recurrences or to look for new cancers
• Information about your legal rights regarding employment and insurance
All of this information may prove valuable in the future, so it's a good idea to keep your survivor care plan in a safe and accessible place.
The last part of the article reminds everyone that treatment may one day be behind you, but it is important to take the time to create a survivor care plan now so you can be the best possible long-term advocate for your health.
Hope you've enjoyed this update! Hugs.
A survivor care plan is really a record of your cancer care that can help you monitor and maintain your health long after treatment ends. Your plan doesn't need to be complicated; in fact, it can start with a simple pen-and-paper list of information. At its most basic, your plan should include:
• The date of your diagnosis and the medical name of your cancer, along with a pathology report of any biopsies you had
• The name of the medical professionals who cared for you, including the doctor who diagnosed you and the doctors in charge of your treatments
• The type or types of treatment you received, as well as any potential side effects or long-term risks of that treatment
• If you had chemotherapy, the dates of your treatments, names and total dosage of the drugs
• If you had radiation, the dates of your treatments and the total dosage of radiation
• If you had surgery, the dates of your surgery and the names of the medical professionals who performed the operation
• Any complications you had from the cancer treatments or surgeries
• A list of any follow-up visits and the results of any tests conducted during those visits
You may have to go to different sources to get this information, but you should get it soon after treatment ends. Some doctors and hospitals are now helping patients create survivor care plans as they reach the end of cancer treatment. If you're working with your health care team, your plan may also include:
• Contact information for support groups
• Other support resources
• Tips for living a healthy lifestyle to reduce your risk of cancer recurrence or new cancers
• A schedule for screening for recurrences or to look for new cancers
• Information about your legal rights regarding employment and insurance
All of this information may prove valuable in the future, so it's a good idea to keep your survivor care plan in a safe and accessible place.
The last part of the article reminds everyone that treatment may one day be behind you, but it is important to take the time to create a survivor care plan now so you can be the best possible long-term advocate for your health.
Hope you've enjoyed this update! Hugs.
Sunday, January 30, 2011
Space Coast Music Fest
Hello everyone! I have two tickets up for a "chance drawing" or raffle, if you will, to the Space Coast Music Fest here in Melbourne on April 15-16. The tickets are for both days AND include two backstage passes to meet either Miranda Lambert or Dierks Bentley!!! Priceless!
As you can guess, all proceeds will go to the Relay for Life event that will be held here at the end of April. Doing my best to help other cancer patients.
Also - we would like to have an Arts and Crafts show sometime around April 9th. Not having experience in this arena, I think it could be a good showing, but still need some guidance - and a lot of hope to pull it off! Will keep you posted....
Busy, busy, busy.....between work, school, and seminars, I have not been very attentive to my site here and I apologize to those of you who do check in periodically. I promise that when I finish school next semester, I will get back to educating on cancer.
Have a wonderful week! If you want to purchase any tickets towards the raffle, please leave me a note here or email me. Tickets are 1 for $2, 3 for $5, 6 for $10 and so on..... hugs everyone!
As you can guess, all proceeds will go to the Relay for Life event that will be held here at the end of April. Doing my best to help other cancer patients.
Also - we would like to have an Arts and Crafts show sometime around April 9th. Not having experience in this arena, I think it could be a good showing, but still need some guidance - and a lot of hope to pull it off! Will keep you posted....
Busy, busy, busy.....between work, school, and seminars, I have not been very attentive to my site here and I apologize to those of you who do check in periodically. I promise that when I finish school next semester, I will get back to educating on cancer.
Have a wonderful week! If you want to purchase any tickets towards the raffle, please leave me a note here or email me. Tickets are 1 for $2, 3 for $5, 6 for $10 and so on..... hugs everyone!
Tuesday, January 18, 2011
Keeping HOPE Alive
Everyday I sit back and try to think of new ways to keep the focus on finding the cause and finding the cure for breast cancer. I fund raise for Making Strides and Relay for Life in the hopes that funds go to help those who need it most. I believe it does.
Another aspect that I think is just as critical is keeping HOPE alive. I recently read that approximately every three minutes another woman is diagnosed with breast cancer. That is what...20 women an hour, 480 women each day, 14,400 each month and 172,800 each year. When you look at it like this, it is overwhelming and almost gut wrenching because lately it seems that almost every week, someone I know is being diagnosed with a dangerous BC.
I feel that somehow with my survival thus far, it is imperative that I make time to offer hope, and help that newly diagnosed woman - or man - keep their hope alive. As those who have had breast cancer know, with a diagnosis comes many dark days and life altering decisions.
Today, I go back to what I've said many times during my writings - if you haven't yet scheduled your mammogram for this year, please do so. Write yourself a promise to do it - you will be saving those who love you most from endless worrying, sleepless nights, and long hospital stays. Love yourself enough to give your body hope. Hope that you never have breast cancer, hope that if you do get it, your body will stay strong enough to fight back, and hope in our medical community as they continue to research every available option to save lives.
My closing words for you are these: I PROMISE.
I want you to promise me that you will schedule your mammogram. Even if it is 4 months out. Don't get caught up in your busy day to day schedule and keep forgetting because cancer waits for no one. My hope for you is that you walk away and go to your calendar to make a note that says, "I promise"....and follow up.
I hope that you have many years ahead with your family, your friends, your neighbors. And yes, your breasts and hair, too.
And I promise I'll stay right here and keep writing to you. Love to all.
Another aspect that I think is just as critical is keeping HOPE alive. I recently read that approximately every three minutes another woman is diagnosed with breast cancer. That is what...20 women an hour, 480 women each day, 14,400 each month and 172,800 each year. When you look at it like this, it is overwhelming and almost gut wrenching because lately it seems that almost every week, someone I know is being diagnosed with a dangerous BC.
I feel that somehow with my survival thus far, it is imperative that I make time to offer hope, and help that newly diagnosed woman - or man - keep their hope alive. As those who have had breast cancer know, with a diagnosis comes many dark days and life altering decisions.
Today, I go back to what I've said many times during my writings - if you haven't yet scheduled your mammogram for this year, please do so. Write yourself a promise to do it - you will be saving those who love you most from endless worrying, sleepless nights, and long hospital stays. Love yourself enough to give your body hope. Hope that you never have breast cancer, hope that if you do get it, your body will stay strong enough to fight back, and hope in our medical community as they continue to research every available option to save lives.
My closing words for you are these: I PROMISE.
I want you to promise me that you will schedule your mammogram. Even if it is 4 months out. Don't get caught up in your busy day to day schedule and keep forgetting because cancer waits for no one. My hope for you is that you walk away and go to your calendar to make a note that says, "I promise"....and follow up.
I hope that you have many years ahead with your family, your friends, your neighbors. And yes, your breasts and hair, too.
And I promise I'll stay right here and keep writing to you. Love to all.
Wednesday, January 5, 2011
Busy is GOOD
Well, the New Year began with a bang - figuratively and literally! :) The fireworks woke me up which was good because I love to watch the ball drop and they were also beautiful to watch as I looked outside my window. I thought to myself how much I would miss these kind of treasured moments so I take them in and commit them to memory....and shortly thereafter I fell back to sleep. LOL!
New Year's Day, I went to bingo with my sister and won.... $1,000...now THAT'S the way to start the year off right! Off course we always split and she held up her end and won a few times both that night and the next day so we did good! We spend a lot, but when you hit on that kind of jackpot - it is sweet!
I'm also in what I think will be the very hardest class of my Master's Degree Program. Finance for Managers. I took Statistics in my BPA to AVOID anymore math classes...lucky me. To make it worse, I'm taking TWO classes!!! I'm a sucker for punishment I guess. Actually, when I found out I had cancer, I had to take a semester off and then only took one class at a time. Now that I'm feeling better, I am determined to graduate in May and walk across that stage with my boys in the audience. They are, after all, the very core of my life and why I do everything I do. I want them to realize that no matter what, they can do whatever they put their minds to...and they know that - this is just reinforcement. ;) And you, this is your reminder that YOU too can do anything you set your mind to do. Think and be positive and it will be so.
I think after graduation I might like to write a book - maybe a motivational book for cancer patients. I'd prefer to be a motivational (and fun)(not funny per se) speaker, but I don't know yet...Choices. That's what I like. I will have the opportunity to choose....and of course, I'll share it with you.
Being on the mend and being busy is good. It makes me feel good and alive. And that is something I want to do a whole lot more of....Cheers to a great new year!! hugs to all!
New Year's Day, I went to bingo with my sister and won.... $1,000...now THAT'S the way to start the year off right! Off course we always split and she held up her end and won a few times both that night and the next day so we did good! We spend a lot, but when you hit on that kind of jackpot - it is sweet!
I'm also in what I think will be the very hardest class of my Master's Degree Program. Finance for Managers. I took Statistics in my BPA to AVOID anymore math classes...lucky me. To make it worse, I'm taking TWO classes!!! I'm a sucker for punishment I guess. Actually, when I found out I had cancer, I had to take a semester off and then only took one class at a time. Now that I'm feeling better, I am determined to graduate in May and walk across that stage with my boys in the audience. They are, after all, the very core of my life and why I do everything I do. I want them to realize that no matter what, they can do whatever they put their minds to...and they know that - this is just reinforcement. ;) And you, this is your reminder that YOU too can do anything you set your mind to do. Think and be positive and it will be so.
I think after graduation I might like to write a book - maybe a motivational book for cancer patients. I'd prefer to be a motivational (and fun)(not funny per se) speaker, but I don't know yet...Choices. That's what I like. I will have the opportunity to choose....and of course, I'll share it with you.
Being on the mend and being busy is good. It makes me feel good and alive. And that is something I want to do a whole lot more of....Cheers to a great new year!! hugs to all!
Saturday, December 25, 2010
Thank you Jesus!!
This time last year, I honestly wasn't certain whether or not I would survive to see this Christmas. I am ecstatic! While my health has not quite yet caught up with my head, this year is so much better than last. I am 7 surgeries in and holding up..well, I have a cold, but in my case, that just doesn't count! ;)
And EVERY Christmas we have so much to be thankful for, so first things first. Thank you Lord...for being. Christmas is because of Who we celebrate- Jesus Christ, the Son of God and the second Person of the Blessed Trinity. He came into this world through Mary, the immaculate virgin of Nazareth. .....and for always being there for me, in light, in darkness, in strength and in weakness. Even when I turned away. You were there. You are there. I hear you - more than ever before. I see all the little miracles now. And I am certain that I have missed many in years gone by, but I silently wait and hope you will continue to show me more. And you do. I am humbled by your grace. You are my every coincidence. Amen.
To my breast cancer sisters, I pray for you each night. You are never far from my heart. From my mouth to God's ears, I pray for your speedy recovery. Timi, Janet, Suzi, Norma, Adrienne, Cindy, Debbie...there are so many of you that I could name another 50 names.......For each one of you, my wish is peace and hope.
My new definition of HOPE is this: Humility, Obedience, Pampering, and Empathy. We should be humble; courteous and respectful of others. Obedience is that we should care for our bodies as God intends and treat it as a temple. We should find the time to pamper our own tired bodies, and others for they fight some kind of battle, too. And finally, empathize with others to understand who they are and why they feel as they do. These things will help make all of us better people.
My last message this beautiful Christmas evening is in regard to another type of blog. On Facebook, we have a "Random acts of kindness" blog. I love it. There are several people committed to doing at least one kind thing for someone else each day. I am so very moved by this group. I hope it becomes HUGE and I would love to see everyone I know take one day and pay it forward or perform an act of kindness. There is so much unjust and there are a lot of people who could benefit from your smile, your hand, an opened door, a bag of groceries.....heck, buy a stranger a lottery ticket...who knows, YOU could change their life. That may be a stretch, but you get the idea.
So, today, while this may not be so random, here is my story. I have been under the weather, but I got up and did it anyway....I have a brother who has spent more of his life behind bars than not, he has hurt many of our family members by lying or stealing. I could go further, but its not necessary. I took cough medicine, ibuprofen, put on my best smile and went to see him on this Christ-mas day. After having to wait for more than an hour to get in, I finally got to see him and was glad I went. It did us both a world of good. We sat and talked and laughed with some other folks nearly the entire time. And I fed him - lots of junk food. His favorite is a honey bun with peanut butter with m&ms mashed up on top. His smile was so genuine and he couldn't believe that I came to see him on Christmas. I knew that it had been important to him. He is my brother, and I miss him. And I smiled to myself as I thought, "I know, I know...WWJD? He would visit." Message received. Like I said, I'm glad I went. While you cannot change stupid behavior, you can promote harmony and give of yourself to help another.
While this may not fall into the category of a random act of kindness and I don't really think it should, I tell the story because it is the immediate effect my visit had on my brother that is the moral of the story. When you do something, big or small, for another person out of love or compassion you bring something special to their day......and in that one special moment all is exactly as it should be.
My children have been blessed with an abundance of gifts and I have had the ability to "adopt a child" for Christmas. I bought her many things, and trust me, it did more for my soul than it will have done for her this day...but oh how I would have loved to have been there when she opened her Princess Barbie......that was number one on her list!
Merry Christmas everyone. I hope that in your day you have kept Christ in your 'mas and listened to him as you've gone about your busy schedules. Take the time to quiet your soul and hear him for he IS talking to you.
And, now, how does all of this relate to my cancer and Christmas. I am here, and I get feel, live, smell, laugh and take it all in. Every single breath of it. And my promise is to continue to keep Christ front and center, do good for others, random or not, and always, always, keep HOPE in my life.
And EVERY Christmas we have so much to be thankful for, so first things first. Thank you Lord...for being. Christmas is because of Who we celebrate- Jesus Christ, the Son of God and the second Person of the Blessed Trinity. He came into this world through Mary, the immaculate virgin of Nazareth. .....and for always being there for me, in light, in darkness, in strength and in weakness. Even when I turned away. You were there. You are there. I hear you - more than ever before. I see all the little miracles now. And I am certain that I have missed many in years gone by, but I silently wait and hope you will continue to show me more. And you do. I am humbled by your grace. You are my every coincidence. Amen.
To my breast cancer sisters, I pray for you each night. You are never far from my heart. From my mouth to God's ears, I pray for your speedy recovery. Timi, Janet, Suzi, Norma, Adrienne, Cindy, Debbie...there are so many of you that I could name another 50 names.......For each one of you, my wish is peace and hope.
My new definition of HOPE is this: Humility, Obedience, Pampering, and Empathy. We should be humble; courteous and respectful of others. Obedience is that we should care for our bodies as God intends and treat it as a temple. We should find the time to pamper our own tired bodies, and others for they fight some kind of battle, too. And finally, empathize with others to understand who they are and why they feel as they do. These things will help make all of us better people.
My last message this beautiful Christmas evening is in regard to another type of blog. On Facebook, we have a "Random acts of kindness" blog. I love it. There are several people committed to doing at least one kind thing for someone else each day. I am so very moved by this group. I hope it becomes HUGE and I would love to see everyone I know take one day and pay it forward or perform an act of kindness. There is so much unjust and there are a lot of people who could benefit from your smile, your hand, an opened door, a bag of groceries.....heck, buy a stranger a lottery ticket...who knows, YOU could change their life. That may be a stretch, but you get the idea.
So, today, while this may not be so random, here is my story. I have been under the weather, but I got up and did it anyway....I have a brother who has spent more of his life behind bars than not, he has hurt many of our family members by lying or stealing. I could go further, but its not necessary. I took cough medicine, ibuprofen, put on my best smile and went to see him on this Christ-mas day. After having to wait for more than an hour to get in, I finally got to see him and was glad I went. It did us both a world of good. We sat and talked and laughed with some other folks nearly the entire time. And I fed him - lots of junk food. His favorite is a honey bun with peanut butter with m&ms mashed up on top. His smile was so genuine and he couldn't believe that I came to see him on Christmas. I knew that it had been important to him. He is my brother, and I miss him. And I smiled to myself as I thought, "I know, I know...WWJD? He would visit." Message received. Like I said, I'm glad I went. While you cannot change stupid behavior, you can promote harmony and give of yourself to help another.
While this may not fall into the category of a random act of kindness and I don't really think it should, I tell the story because it is the immediate effect my visit had on my brother that is the moral of the story. When you do something, big or small, for another person out of love or compassion you bring something special to their day......and in that one special moment all is exactly as it should be.
My children have been blessed with an abundance of gifts and I have had the ability to "adopt a child" for Christmas. I bought her many things, and trust me, it did more for my soul than it will have done for her this day...but oh how I would have loved to have been there when she opened her Princess Barbie......that was number one on her list!
Merry Christmas everyone. I hope that in your day you have kept Christ in your 'mas and listened to him as you've gone about your busy schedules. Take the time to quiet your soul and hear him for he IS talking to you.
And, now, how does all of this relate to my cancer and Christmas. I am here, and I get feel, live, smell, laugh and take it all in. Every single breath of it. And my promise is to continue to keep Christ front and center, do good for others, random or not, and always, always, keep HOPE in my life.
Friday, December 24, 2010
One Set at at Time
Ladies - and men! I just want to share a recent FB email with you. It is the reason I started this blog, and continue to do this blog. It is also my Christmas wish for every woman who reads this that they will mark their calendars to schedule their annual mammograms and perform their monthly breast self exam. It could save your life.
In its entirety, my friend and old co-worker sent me this about one week ago:
"Just wanted to let you know that I had my mammogram done and the girls are healthy as can be. Viera diagnostics, who does the mammograms, gives roses to each of the women who come in for the test. The technician who did the test was so nice too!
I felt important and respected because I went in for my test. Sounds so silly when I see it in writing however, I really wanted to share this with you because of all you have been through and you inspired me to make the appointment.
Thought this would bring a smile to your face. Merry Christmas Arla, for you are a shining star".
And that note, my friends, made me feel like a shining star this week. To know that she is healthy - and took the time to do this important test.
Merry Christmas to all of you. May you be blessed beyond your wildest dreams with peace, good health and happiness.
In its entirety, my friend and old co-worker sent me this about one week ago:
"Just wanted to let you know that I had my mammogram done and the girls are healthy as can be. Viera diagnostics, who does the mammograms, gives roses to each of the women who come in for the test. The technician who did the test was so nice too!
I felt important and respected because I went in for my test. Sounds so silly when I see it in writing however, I really wanted to share this with you because of all you have been through and you inspired me to make the appointment.
Thought this would bring a smile to your face. Merry Christmas Arla, for you are a shining star".
And that note, my friends, made me feel like a shining star this week. To know that she is healthy - and took the time to do this important test.
Merry Christmas to all of you. May you be blessed beyond your wildest dreams with peace, good health and happiness.
Thursday, December 16, 2010
Lucky 7
This morning I had my "Lucky 7" - seventh surgery that is. They finally worked on reconstructing my nipples. I was wide awake for the entire thing - now THAT was different. A little freaky for someone like me. I don't like blood and guts - especially my own. BUT, as usual, they did a fine job.....thought I might just wrap myself up, slap a bow on me for a Merry Christmas!! LOL!
It certainly will be merry. After all, how could it not be? I am here and I have the ability to help myself and hopefully help, or at least lift the spirits of others, too.
This Christmas, I bought for a young girl, 3 years old and it brought me such great joy. I remember being that little girl some years ago. Dirt poor and nothing for Christmas but a dinner - which was fine for me because we didn't know anything else.
As you get tossed about in the Christmas rush, I hope you remember the true meaning of why we celebrate. So much has gotten lost in gift giving instead of being thankful and honoring our good Lord who gives us so much and who was born and died for us.
Wishing you safe travels and a peaceful holiday season.
It certainly will be merry. After all, how could it not be? I am here and I have the ability to help myself and hopefully help, or at least lift the spirits of others, too.
This Christmas, I bought for a young girl, 3 years old and it brought me such great joy. I remember being that little girl some years ago. Dirt poor and nothing for Christmas but a dinner - which was fine for me because we didn't know anything else.
As you get tossed about in the Christmas rush, I hope you remember the true meaning of why we celebrate. So much has gotten lost in gift giving instead of being thankful and honoring our good Lord who gives us so much and who was born and died for us.
Wishing you safe travels and a peaceful holiday season.
Tuesday, December 7, 2010
Saying Goodbye with Grace
In her words: "There are times when we aren't able to muster as much strength and patience as we would like. But I have found that in the simple act of living with hope, and in the daily effort to have a positive impact in the world, the days I
do have are made all the more meaningful and precious. And for that I am grateful." Me too, for every single day. May God bless you and your children and may you rest in peace Elizabeth.
I knew when I read her post here on FB early this morning that the time was near. She spoke of her children and these words. In my eyes, she put a face of grace and timeless beauty on breast cancer. She endured great hardship and now she has gone home to our Father. I had only prayed that it would be after the holidays for the sake of the children. I am saddened by her loss and my heart aches for them this evening.
This evening, my thoughts and prayers go out to everyone who has faced this battle. It is a tough disease and we do the best we can. Thousands die and thousands live. Rich or poor, black or white, male or female, it does not discriminate, it just does what it is designed to do: destroy.
This is your gentle reminder to do your monthly self-exams to look for unusual lumps or bumps (or something that just isn't right for you) or to get your mammogram if it has been more than 12 months and you are over 40 OR have a family history of breast cancer.
Together, we can make a difference in this battle. Here's to hoping we find a cure and find the cause.
Love to all.
do have are made all the more meaningful and precious. And for that I am grateful." Me too, for every single day. May God bless you and your children and may you rest in peace Elizabeth.
I knew when I read her post here on FB early this morning that the time was near. She spoke of her children and these words. In my eyes, she put a face of grace and timeless beauty on breast cancer. She endured great hardship and now she has gone home to our Father. I had only prayed that it would be after the holidays for the sake of the children. I am saddened by her loss and my heart aches for them this evening.
This evening, my thoughts and prayers go out to everyone who has faced this battle. It is a tough disease and we do the best we can. Thousands die and thousands live. Rich or poor, black or white, male or female, it does not discriminate, it just does what it is designed to do: destroy.
This is your gentle reminder to do your monthly self-exams to look for unusual lumps or bumps (or something that just isn't right for you) or to get your mammogram if it has been more than 12 months and you are over 40 OR have a family history of breast cancer.
Together, we can make a difference in this battle. Here's to hoping we find a cure and find the cause.
Love to all.
Tuesday, November 23, 2010
Erma's Words
Today I would like to send out a gentle reminder to just love and live your life. Every single day. You can never get a moment back once it is gone and for that reason, I give you Erma Bombeck, who defines it best with "If I Had My Life To Live Over Again." For all of you out there, I have three words....faith, hope and love.
IF I HAD MY LIFE TO LIVE OVER - by Erma Bombeck
I would have gone to bed when I was sick instead of pretending the earth would go into a holding pattern if I weren't there for the day.
I would have burned the pink candle sculpted like a rose before it melted in storage. I would have talked less and listened more.
I would have invited friends over to dinner even if the carpet was stained, or the sofa faded.
I would have eaten the popcorn in the 'good' living room and worried much less about the dirt when someone wanted to light a fire in the fireplace.
I would have taken the time to listen to my grandfather ramble about his youth. I would have shared more of the responsibility carried by my husband.
I would never have insisted the car windows be rolled up on a summer day because my hair had just been teased and sprayed. I would have sat on the lawn with my grass stains.
I would have cried and laughed less while watching television and more while watching life.
I would never have bought anything just because it was practical, wouldn't show soil, or was guaranteed to last a lifetime.
Instead of wishing away nine months of pregnancy, I'd have cherished every moment and realized that the wonderment growing inside me was the only chance in life to assist God in a miracle.
When my kids kissed me impetuously, I would never have said, 'Later... Now go get washed up for dinner.' There would have been more 'I love you's' More 'I'm sorry's.'
But mostly, given another shot at life, I would seize every minute, look at it and really see it . Live it and never give it back. STOP SWEATING THE SMALL STUFF!
Don't worry about who doesn't like you, who has more, or who's doing what
Instead, let's cherish the relationships we have with those who do love us...
IF I HAD MY LIFE TO LIVE OVER - by Erma Bombeck
I would have gone to bed when I was sick instead of pretending the earth would go into a holding pattern if I weren't there for the day.
I would have burned the pink candle sculpted like a rose before it melted in storage. I would have talked less and listened more.
I would have invited friends over to dinner even if the carpet was stained, or the sofa faded.
I would have eaten the popcorn in the 'good' living room and worried much less about the dirt when someone wanted to light a fire in the fireplace.
I would have taken the time to listen to my grandfather ramble about his youth. I would have shared more of the responsibility carried by my husband.
I would never have insisted the car windows be rolled up on a summer day because my hair had just been teased and sprayed. I would have sat on the lawn with my grass stains.
I would have cried and laughed less while watching television and more while watching life.
I would never have bought anything just because it was practical, wouldn't show soil, or was guaranteed to last a lifetime.
Instead of wishing away nine months of pregnancy, I'd have cherished every moment and realized that the wonderment growing inside me was the only chance in life to assist God in a miracle.
When my kids kissed me impetuously, I would never have said, 'Later... Now go get washed up for dinner.' There would have been more 'I love you's' More 'I'm sorry's.'
But mostly, given another shot at life, I would seize every minute, look at it and really see it . Live it and never give it back. STOP SWEATING THE SMALL STUFF!
Don't worry about who doesn't like you, who has more, or who's doing what
Instead, let's cherish the relationships we have with those who do love us...
Monday, November 22, 2010
A Friend Gets GREAT News
My friend, Adrienne, who was diagnosed as Stage 4, right at Christmas time 2009, has just learned that all of her tests came back clear! That's right - no cancer is seen anywhere in her body. I have to tell you how overwhelming that is for me. Not only do I consider her my friend, but I look at her as a fine young woman and mother who is destined to leave her touch on this world.
I have said for some time now that breast cancer is not a death sentence. I say it again, and Adrienne is living proof. If you are reading my blog for the first time, read this and remember it. It is manageable, but you must change your lifestyle and incorporate a lot of things you might not otherwise like.
This is great news for Thanksgiving. Thank you, Jesus for giving us hope, and faith, and family and friends.
May you all have a blessed Thanksgiving with yours. Hugs~
I have said for some time now that breast cancer is not a death sentence. I say it again, and Adrienne is living proof. If you are reading my blog for the first time, read this and remember it. It is manageable, but you must change your lifestyle and incorporate a lot of things you might not otherwise like.
This is great news for Thanksgiving. Thank you, Jesus for giving us hope, and faith, and family and friends.
May you all have a blessed Thanksgiving with yours. Hugs~
Sunday, November 21, 2010
It's Been Awhile
It's been a bit since I've made a post, but I've been busy with work and school and getting ready for Christmas. I've almost finished up everything. Going out on Black Friday will be just for the beauty of enjoy the adrenalin rush......and the chaos of watching people as they run around like ants.
I have four, not two classes to finish my degree. I so thought I was going on my last set...oh well...I WILL knock these out and graduate in May. I have to, I want my boys to watch me walk across that stage taking my dual master's degree...AND having done it all the while I've been ill. I want them to know they can do anything they put their hearts and minds into doing.
Received other recognition I was not aware of. The National Health Review posted our stories (six women from the Making Strides Makeover) in their magazine. Janet sent me the link which gives a brief paragraph on each of us, then the link to read each of our stories. The only thing they goofed on was our names - they totally messed those up. What I like about the publicity is that I hope it finds its way into the hands of another woman who may be going through this, and that maybe, just maybe, she won't feel so alone in her journey. If you are interesting in seeing it, please go to:
http://www.nationalhealthreview.net/
for the magazine and click on
http://www.nationalhealthreview.net/index.php?option=com_content&view=article&id=229:acs-extreme-makeover-winners-essays&catid=82
if you'd like to read our stories.
Leslie, my favorite ARNP in Tampa will be coming forth with a link on Facebook called F4...It will be designed to allow women - and men - to do risk assessments on themselves for breast cancer. You input your information and it provides you with the information straight up that you need to know and what you can do to help yourself. The best part - all can be done right from the privacy of your own home - FREE. She is hoping that its up and running (pending the patent now) in the next month or two. Remember this post in a couple of months then check it out and send it on when its up and running. I promise you, you will be helping someone else.
Well, time for housecleaning and school work (ugghh)! Have a great week everyone!
I have four, not two classes to finish my degree. I so thought I was going on my last set...oh well...I WILL knock these out and graduate in May. I have to, I want my boys to watch me walk across that stage taking my dual master's degree...AND having done it all the while I've been ill. I want them to know they can do anything they put their hearts and minds into doing.
Received other recognition I was not aware of. The National Health Review posted our stories (six women from the Making Strides Makeover) in their magazine. Janet sent me the link which gives a brief paragraph on each of us, then the link to read each of our stories. The only thing they goofed on was our names - they totally messed those up. What I like about the publicity is that I hope it finds its way into the hands of another woman who may be going through this, and that maybe, just maybe, she won't feel so alone in her journey. If you are interesting in seeing it, please go to:
http://www.nationalhealthreview.net/
for the magazine and click on
http://www.nationalhealthreview.net/index.php?option=com_content&view=article&id=229:acs-extreme-makeover-winners-essays&catid=82
if you'd like to read our stories.
Leslie, my favorite ARNP in Tampa will be coming forth with a link on Facebook called F4...It will be designed to allow women - and men - to do risk assessments on themselves for breast cancer. You input your information and it provides you with the information straight up that you need to know and what you can do to help yourself. The best part - all can be done right from the privacy of your own home - FREE. She is hoping that its up and running (pending the patent now) in the next month or two. Remember this post in a couple of months then check it out and send it on when its up and running. I promise you, you will be helping someone else.
Well, time for housecleaning and school work (ugghh)! Have a great week everyone!
Monday, November 1, 2010
Redefining Normal
Normal used to be jogging, having a cocktail with friends, mowing the lawn, moving furniture, goofing off with my boys, yada, yada....all the normal kind of things a woman might do on a regular or irregular basis. When you get breast cancer, everything becomes abnormal and your world changes, but YOU have the power within yourself to define your new normal.
Redefine your normal to be something special. Make each new day better than the old normal. You can't lift that big bag? So what....can't mow the lawn? Big deal - there are some fine looking yard men out there. Can't move furniture? Work around it. Normal can be what we want it to be.
As I just told a friend whose mother was diagnosed with breast cancer, this stuff sucks, but it doesn't necessarily mean it is a death sentence.
It has taken me a whole year to truly grasp that. In a nutshell, I had a part of my body reject me and try to kill me. That is very scary. Who is to say is won't happen again? No one. So guess what, my way of redefining normal is (that because I or "they" can't guarantee that it will not happen again) that I promise myself each day to try to be more patient with others, love more, laugh more, and really listen to what is being said.
I only get one chance at redefining this new normal and so I want it to be a good one. If you are redefining your normal, I hope you choose the happier thoughts and the things that will make your days great and special. For me, it's the only way to go.
Wishing you a blessed week and more birthdays ~
hugs.
Redefine your normal to be something special. Make each new day better than the old normal. You can't lift that big bag? So what....can't mow the lawn? Big deal - there are some fine looking yard men out there. Can't move furniture? Work around it. Normal can be what we want it to be.
As I just told a friend whose mother was diagnosed with breast cancer, this stuff sucks, but it doesn't necessarily mean it is a death sentence.
It has taken me a whole year to truly grasp that. In a nutshell, I had a part of my body reject me and try to kill me. That is very scary. Who is to say is won't happen again? No one. So guess what, my way of redefining normal is (that because I or "they" can't guarantee that it will not happen again) that I promise myself each day to try to be more patient with others, love more, laugh more, and really listen to what is being said.
I only get one chance at redefining this new normal and so I want it to be a good one. If you are redefining your normal, I hope you choose the happier thoughts and the things that will make your days great and special. For me, it's the only way to go.
Wishing you a blessed week and more birthdays ~
hugs.
Tuesday, October 26, 2010
Slightly Annoyed
So, today, I am slightly annoyed. I finally got in to see a local doc to check the "cough" that's been hanging around for months and also my back where the pain has kicked up a few notches - from an accident. This was my morning:
Supposed to see nurse at 0730 and doc at 0800. Saw nurse at 0810 and doc at 0830. Nice - thank you. Doc checks my ears, nose and throat. She tells me it is not good for a woman "my age" to be jogging "statistics say so" and "we end up with all kinds of problems". WTH?? Lady, in case you didn't notice, I'm way ahead of you. Besides, I've been a runner since I was 10 - a little late to tell me that now.
Anyway, she sends me to lab, xray, and pharmacy (in that order and from only two minutes of looking at me). When I asked why the pharmacy, she said to pick up a prescription. I thought it was something I had forgotten to pick up. No problem.
Lab, give blood - check. Xrays, chest and back - check check. Pharmacy, prescription - stop. It's for what? Allergies? Who said I had allergies - WHO EVER did an allergy test on me to prescribe me allergy stuff? NO ONE. Yet in less than two minutes this doctor thought she had me all figured out. Well. slap me on the ass and call me unhappy because I about came unglued right there, but I realized it was not the pharmacists fault.
The prescription is Flunisolide-Nasal. It is for stuffy/runny nose, itchy eyes, nose/throat and sneezing - NONE of which I have. Now the side effects are temporary nose/throat dryness or irritation or COUGH, headache, nosebleeds, sneezing and unpleasant taste/smell may occur. Seriously, I HAVE the cough and it is going to GIVE me a cough? This sounds more like it gives you allergies not that it helps allergies.....She assessed me in less than two minutes and NEVER looked at what she was doing, she just picked up her pen and started writing. I swear to God as I live and breathe.....how do you do that with a cancer patient????
I ended up in the Patient Advocate's office where I should have went LAST TIME after she ordered an ultrasound on the wrong breast. I guess instead of giving a second chance, I should have taken note and run....to the next doctor. Well, now I am. Needless to say, she called back, and apparently my lungs are "normal" and I have "arthritis" in my back....guess the bulging discs that have been there for 10 years have disappeared too. Not sure if I should trust anything.
So, yep I am slightly annoyed. I have always received great care at this facility and now I am questioning it. I want my old doctor back....he knows who he is, I saw him today...please come back.... lol
To close this, I tell you this - as a cancer patient, you MUST be proactive in your own care, this is YOUR life. People make mistakes all the time, help them not make one with you. If they do, take corrective action. We only get one chance at this great life.
Supposed to see nurse at 0730 and doc at 0800. Saw nurse at 0810 and doc at 0830. Nice - thank you. Doc checks my ears, nose and throat. She tells me it is not good for a woman "my age" to be jogging "statistics say so" and "we end up with all kinds of problems". WTH?? Lady, in case you didn't notice, I'm way ahead of you. Besides, I've been a runner since I was 10 - a little late to tell me that now.
Anyway, she sends me to lab, xray, and pharmacy (in that order and from only two minutes of looking at me). When I asked why the pharmacy, she said to pick up a prescription. I thought it was something I had forgotten to pick up. No problem.
Lab, give blood - check. Xrays, chest and back - check check. Pharmacy, prescription - stop. It's for what? Allergies? Who said I had allergies - WHO EVER did an allergy test on me to prescribe me allergy stuff? NO ONE. Yet in less than two minutes this doctor thought she had me all figured out. Well. slap me on the ass and call me unhappy because I about came unglued right there, but I realized it was not the pharmacists fault.
The prescription is Flunisolide-Nasal. It is for stuffy/runny nose, itchy eyes, nose/throat and sneezing - NONE of which I have. Now the side effects are temporary nose/throat dryness or irritation or COUGH, headache, nosebleeds, sneezing and unpleasant taste/smell may occur. Seriously, I HAVE the cough and it is going to GIVE me a cough? This sounds more like it gives you allergies not that it helps allergies.....She assessed me in less than two minutes and NEVER looked at what she was doing, she just picked up her pen and started writing. I swear to God as I live and breathe.....how do you do that with a cancer patient????
I ended up in the Patient Advocate's office where I should have went LAST TIME after she ordered an ultrasound on the wrong breast. I guess instead of giving a second chance, I should have taken note and run....to the next doctor. Well, now I am. Needless to say, she called back, and apparently my lungs are "normal" and I have "arthritis" in my back....guess the bulging discs that have been there for 10 years have disappeared too. Not sure if I should trust anything.
So, yep I am slightly annoyed. I have always received great care at this facility and now I am questioning it. I want my old doctor back....he knows who he is, I saw him today...please come back.... lol
To close this, I tell you this - as a cancer patient, you MUST be proactive in your own care, this is YOUR life. People make mistakes all the time, help them not make one with you. If they do, take corrective action. We only get one chance at this great life.
Sunday, October 24, 2010
10-23-10 We ALL Made Strides
The "Making Strides Against Breast Cancer" event was held in Viera and over 6,000 people showed up - just for this one event. It was awe-inspiring. I saw laughter, tears, hugs, new friends, old friends, and even a lot of co-workers - more than I would have expected.
So did I actually jog the whole event? YES I DID. In 35 minutes actually and I set a personal best record since getting this disease. It was hard, and I carried the medallion and the pink rose they gave me. Each time a piece of the rose fell, I made a wish for someone I knew with breast cancer. The sun was hard on me but I refused to let it get to me this year. I sought shade where possible - although very limited, it did help and the water and gatorade on the road was excellent this year. There were cheerleaders and all kinds of people on the route cheering me on as I ran and it touched my heart - and apparently my legs because I ran faster than normal. Actually, I have to thank the young 20+ yo man who passed me four or five times. After the last time, I thought to myself, "No ya don't, you're not passing me again...." so I kicked it up a notch. Finally, one of our LT's in the PD came and ran in the final 1/8 mile with me - very cool and appreciated. Thank you Marc.
Unknown to me, I would beat some other fine folks that I would never have thought possible. Surely they sat down somewhere, had a Coke, used the rest room, etc.....lol. My sister, Sherry, even ran more than of this event. This after having a knee replaced. She rocks. The excitement at this event always far exceeds my expectations and MSABC has become my favorite day of the year. It fuels my faith and hope that I can and will continue to beat this disease. Each day I count down is one more day to living as a free woman. As of today, I am one year, three months and two days breast cancer free. Thank you, Jesus.
I did win an awesome "Fun in the Sun" package that contained a pink lounge chair (awesome!), a lime cooler on wheels (very awesome) and a brilliantly colored bag by Anne Ormsby filled with all kinds of goodies and one over sized lime beach towel. Thank you so much to the people who pulled it together. I love it.
I saw all the ladies that work at ACS who make this event happen. They are to be commended for their hard work. Erica, Anne, Denise, Lana (school) - and so many others behind the scenes. Also, to Pam M., Marketing Director at the Avenues - awesome as usual. I had the privilege of meeting all these women when I was selected for the makeover in August. I met some other wonderful people also. When I was buying tickets to "win" something, I realized that the donations/prizes were going to help an elderly woman with breast cancer. Yep, give me $20 in tickets. Didn't matter if I won or not, I wanted to help her win - the battle. The group of them had such a beautiful accent - I think it was English, but I'm not sure and they were just good decent people. I'm glad I crossed paths with them.
Our group went to Mimi's for breakfast, but I wasn't hungry. I was overheated from the sun and needed something ice cold. I opted for a Cinnamon Mocha Freeze. OMG - it was freaking delicious. I will go back for another of those.... :)
Anyway, I am posting pictures here to share with all of you. I hope that you have attended your local events. If you have the ability to help your local ACS in any way, I say please do so. What they do is offer hope... and that is something I think we can all live with.
Today, I am inspired by the lives of so many others who continue to reach out and touch my life. I hope that I can return that gift as I continue to heal.
Have a blessed and beautiful week.
So did I actually jog the whole event? YES I DID. In 35 minutes actually and I set a personal best record since getting this disease. It was hard, and I carried the medallion and the pink rose they gave me. Each time a piece of the rose fell, I made a wish for someone I knew with breast cancer. The sun was hard on me but I refused to let it get to me this year. I sought shade where possible - although very limited, it did help and the water and gatorade on the road was excellent this year. There were cheerleaders and all kinds of people on the route cheering me on as I ran and it touched my heart - and apparently my legs because I ran faster than normal. Actually, I have to thank the young 20+ yo man who passed me four or five times. After the last time, I thought to myself, "No ya don't, you're not passing me again...." so I kicked it up a notch. Finally, one of our LT's in the PD came and ran in the final 1/8 mile with me - very cool and appreciated. Thank you Marc.
Unknown to me, I would beat some other fine folks that I would never have thought possible. Surely they sat down somewhere, had a Coke, used the rest room, etc.....lol. My sister, Sherry, even ran more than of this event. This after having a knee replaced. She rocks. The excitement at this event always far exceeds my expectations and MSABC has become my favorite day of the year. It fuels my faith and hope that I can and will continue to beat this disease. Each day I count down is one more day to living as a free woman. As of today, I am one year, three months and two days breast cancer free. Thank you, Jesus.
I did win an awesome "Fun in the Sun" package that contained a pink lounge chair (awesome!), a lime cooler on wheels (very awesome) and a brilliantly colored bag by Anne Ormsby filled with all kinds of goodies and one over sized lime beach towel. Thank you so much to the people who pulled it together. I love it.
I saw all the ladies that work at ACS who make this event happen. They are to be commended for their hard work. Erica, Anne, Denise, Lana (school) - and so many others behind the scenes. Also, to Pam M., Marketing Director at the Avenues - awesome as usual. I had the privilege of meeting all these women when I was selected for the makeover in August. I met some other wonderful people also. When I was buying tickets to "win" something, I realized that the donations/prizes were going to help an elderly woman with breast cancer. Yep, give me $20 in tickets. Didn't matter if I won or not, I wanted to help her win - the battle. The group of them had such a beautiful accent - I think it was English, but I'm not sure and they were just good decent people. I'm glad I crossed paths with them.
Our group went to Mimi's for breakfast, but I wasn't hungry. I was overheated from the sun and needed something ice cold. I opted for a Cinnamon Mocha Freeze. OMG - it was freaking delicious. I will go back for another of those.... :)
Anyway, I am posting pictures here to share with all of you. I hope that you have attended your local events. If you have the ability to help your local ACS in any way, I say please do so. What they do is offer hope... and that is something I think we can all live with.
Today, I am inspired by the lives of so many others who continue to reach out and touch my life. I hope that I can return that gift as I continue to heal.
Have a blessed and beautiful week.
Thursday, October 21, 2010
4,000 Friends
I think that in two days, I shall go for a nice walk (well....jog actually) with 4,000 of my closest friends. Yep!!! Finally, it's time for the annual Making Strides Against Breast Cancer 5K. My team, The Spice Rack has raised nearly $4,500 and I am so proud of them as they are surely making a difference in a future breast cancer patient's life.
On top of that, so many more folks from work have signed on to go and walk or run as well. I am so pleased that I have possibly inspired them to take a part in something so special to so many cancer patients. Awareness and research will make all the difference for future generations. Last year's Making Strides event CD is done and I got a copy and lo and behold I am in it several times and I say this to all of you, if you have not yet gone to one of these events - DO IT!!!! That day last year changed my perspective entirely. I went from "thinking" I would beat this cancer, to knowing it deep in my soul. I felt it because of all the love and caring and hope that came from that event that day. I am excited to participate again. Thank you Jesus for giving me that opportunity to be here to stroll that same path again....
If you are involved I wish you great strides! Thank you for all you do in helping fund the cure.....until next time....
Hugs~
On top of that, so many more folks from work have signed on to go and walk or run as well. I am so pleased that I have possibly inspired them to take a part in something so special to so many cancer patients. Awareness and research will make all the difference for future generations. Last year's Making Strides event CD is done and I got a copy and lo and behold I am in it several times and I say this to all of you, if you have not yet gone to one of these events - DO IT!!!! That day last year changed my perspective entirely. I went from "thinking" I would beat this cancer, to knowing it deep in my soul. I felt it because of all the love and caring and hope that came from that event that day. I am excited to participate again. Thank you Jesus for giving me that opportunity to be here to stroll that same path again....
If you are involved I wish you great strides! Thank you for all you do in helping fund the cure.....until next time....
Hugs~
Wednesday, October 20, 2010
Women of Hope
I joined a group meeting in the hopes of meeting others like myself - for many reasons. One, I might not feel so alone in this journey (although I would NEVER wish this on anyone else), two, we may be able to help lift each others spirits when we are down (and I have had my share of those days), and three, to continue to break out of my little box as I promised myself I would.
Who knew I would meet another Triple Negative. She's Stage 4 and guess what - she has been since 2007. THAT is a true miracle walking. Any other TNBCs out there reading need to go back and read that sentence again - She is still walking among us...Wow and amen. Let me tell you just a few things she shared with me - who knows, her journey thus far may help you:
1. They put her on Femara even though triple negatives rarely respond (she did)
2. She takes Zometa every month - it helps her bones release marrow - and her hip has regrown by itself.
3. She has had 42, yes, I said 42 chemotherapy treatment and has hair and a sense of humor.
I also met another wonderful new member, Karen. She too is a BC survivor and recently lost her husband. I could see the pain in her eyes yet there she was trying to get through the day. Her children are struggling. I hope you will keep her kids in your thoughts and prayers for surely as much as we go through, the kids take it quite hard.
I leave you with this for today. Fear is in my mind but the Spirit is in my heart. Did you know that "Fear Not" is in the bible 360 times?? That is almost one time for every single day of the year....interesting, huh...and in my dark hours when I am afraid, I try to remember these things and be comforted in knowing and remembering that I am exactly where God wants me to be. And so are YOU~~ :)
Have an awesome week~~ Hugs.
Who knew I would meet another Triple Negative. She's Stage 4 and guess what - she has been since 2007. THAT is a true miracle walking. Any other TNBCs out there reading need to go back and read that sentence again - She is still walking among us...Wow and amen. Let me tell you just a few things she shared with me - who knows, her journey thus far may help you:
1. They put her on Femara even though triple negatives rarely respond (she did)
2. She takes Zometa every month - it helps her bones release marrow - and her hip has regrown by itself.
3. She has had 42, yes, I said 42 chemotherapy treatment and has hair and a sense of humor.
I also met another wonderful new member, Karen. She too is a BC survivor and recently lost her husband. I could see the pain in her eyes yet there she was trying to get through the day. Her children are struggling. I hope you will keep her kids in your thoughts and prayers for surely as much as we go through, the kids take it quite hard.
I leave you with this for today. Fear is in my mind but the Spirit is in my heart. Did you know that "Fear Not" is in the bible 360 times?? That is almost one time for every single day of the year....interesting, huh...and in my dark hours when I am afraid, I try to remember these things and be comforted in knowing and remembering that I am exactly where God wants me to be. And so are YOU~~ :)
Have an awesome week~~ Hugs.
Sunday, October 17, 2010
Recouping
This weekend has been about allowing my body to recoup. I have had no home work to do, no major house projects, no nothing. So I am just enjoying allowing myself down time.
My pup, Reina will require surgery to her knee which I will have done after the first of the year. She's only two and a half, so her prognosis thereafter is very good. She is like my child so I have no intention of putting her down. When I was sick she never left my side. Somewhere on this site is a picture of her laying on me while I rested on the couch. She was distraught not knowing what to do - but ever faithful, and so I will be with her as she goes through some tough days.
Feeling good. I ran 3 miles on Thursday. It was HARDDDDDD but I did it. Took me much longer than anticipated probably because I attempted it the day after a 2.75 mile run, so I had to walk for a minute, twice. No biggy....Like I said before - baby steps turn into greater steps. These little milestones are all about making my body healthier and stronger on the inside.
Was at an F.I.T (FL Institute of Tech) Wellness program on Friday taking photographs of one of our volunteers and an acupuncturist took my pulse and said to have my doc check my lungs. Interesting she said that as she had no idea what I've been through. I told her and she said it could have been the anesthesia, but to still have my lungs checked. Funny, I'm always trying to clear them. Hmm - check - will do.
You all have a wonderful week. Halloween is almost here, again (thank you, Jesus) and Thanksgiving is right around the corner. I am thrilled because I survived to see it - again. YESSS!!!!! Hope, faith, and love........
My pup, Reina will require surgery to her knee which I will have done after the first of the year. She's only two and a half, so her prognosis thereafter is very good. She is like my child so I have no intention of putting her down. When I was sick she never left my side. Somewhere on this site is a picture of her laying on me while I rested on the couch. She was distraught not knowing what to do - but ever faithful, and so I will be with her as she goes through some tough days.
Feeling good. I ran 3 miles on Thursday. It was HARDDDDDD but I did it. Took me much longer than anticipated probably because I attempted it the day after a 2.75 mile run, so I had to walk for a minute, twice. No biggy....Like I said before - baby steps turn into greater steps. These little milestones are all about making my body healthier and stronger on the inside.
Was at an F.I.T (FL Institute of Tech) Wellness program on Friday taking photographs of one of our volunteers and an acupuncturist took my pulse and said to have my doc check my lungs. Interesting she said that as she had no idea what I've been through. I told her and she said it could have been the anesthesia, but to still have my lungs checked. Funny, I'm always trying to clear them. Hmm - check - will do.
You all have a wonderful week. Halloween is almost here, again (thank you, Jesus) and Thanksgiving is right around the corner. I am thrilled because I survived to see it - again. YESSS!!!!! Hope, faith, and love........
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