A blog devoted to helping others commit to living with passion and hope. You CAN survive cancer. (Please note, ALL photographs are property of blog owner and NOT for copying or use on any other site without specific blog owner permission.)
Friday, February 17, 2012
A Kiss from God
Monday, February 13, 2012
Patient Safety - Lack of Communication
A few days back on MedPage I read an interesting article on patient safety. What caught my attention was that it was related to communication between the patient and the doctor. Although Medpage is open to virtually anyone, my guess is that the population most likely to refer to it would be the medical community, so who would the target audience be? The medical community? Yes, exactly. I think it will be an enriching experience for the already well-educated doctor to partake in commo lessons designed to help them relate to the patient, who in many cases, may not be educated. While working on my master's degree, I took several communications classes and when you don't have a good connection between the sender and the receiver, a breakdown will occur in the transmission of information.
As a patient, if you don't understand what your doctor, or nurse, is explaining to you, you have an obligation to YOURSELF, to ask them to slow down and explain it in terms that you can understand. Most will be happy to do so. What I have found is that they are just speaking in a lingo they've become accustomed to and not trying to deter you on purpose. If you are one of the other kind of patients I have seen that does not want to know, then please, at least let a family member, or close friend, be at the appointments with you, to help make sense of the chaos. In the long run, at least their presence by your side will be comforting.
Here is Medpage's article as it was printed:
Conversations in Movement Disorders: Communication and Patient Safety
Discover how effective dialogue and feedback between patient and physician can help you achieve optimal patient outcomes. Communication errors were the underlying cause of 65% of unexpected negative patient outcomes between 1995 and 2004, according to the Joint Commission on Accreditation of Health Care Organizations. Learn how to improve your communication and patient safety with this new activity, Conversations in Movement Disorders: Communication and Patient Safety. This ground breaking, media-rich learning experience addressing how physician-patient communication impacts patient safety and offers methods for improving interpersonal communication. Learners will be asked to identify their personal communication style and then observe reenactments of actual clinical situations and patient interviews; Hear about physiatrists’ own experiences regarding the impacts of communication breakdowns as well as examples of successful efforts; and learn to identify the traits of four distinct communication styles and how to adjust to them in real-time situations resulting in an increase in understanding between patients, physicians and other medical professionals, enhance the flow of information and ultimately, improve patient outcomes.If you are not a regular follower of the page, I have found it quite useful and also good reading.
Today, on 13th day of February 2012, I hope that you are having a beautiful, healthy as can be, day and know that you are exactly where God wants you to be today and always. Have a wonderful Valentine's day everyone. Hugs~
Wednesday, January 25, 2012
Another TNBC patient
I remember when I first started this walk down cancer road. I was scared. Probably just as much, if not more so, than a lot of you out there. Both my parents died from cancer, my sister had Stage 2 triple negative BC, and I too was diagnosed as triple negative. I remember feeling like I couldn't breathe. I also remember my first three words....."Oh my God"....
Surely he heard my cries because for all the days that followed, I knew HE knew what HE was doing and that I must trust in HIM. You have a choice with God, just as you do this disease. You can walk with HIM/it, or away from HIM/it. I chose to walk with HIM because as I've known all my life, I know he will carry me when I am weak.
I also found it imperative to keep a sense of humor. Trust me, aside from the gravity of my situation, there were also several jokes tossed around. That and my sister's falsey tossed into the pool...where it floated..and I laughed till I cried.
All in all, the days are not going to go by any faster or slower just because you have cancer. And, I bet you will be more grateful for each sunrise and each sunset that you get to enjoy. Take each moment as they come whether you feel great, or not so great. Part of this whole deal is that the treatment designed to heal our bodies actually makes us sick at first. Just roll with it and take it as a cue from your body that it is doing its job. That is all you can do.
When you are unsure if you can do this and get through it, trust me - YOU can, and you will. There are thousands of us out here, right here, sending you blessings. We do care about YOU and your cancer and we want you to get better.
Life isn't perfect but sometimes our society strangely acts as if it is supposed to be. If that were the case, we'd be in heaven already, right?? So, don't sweat the petty stuff and don't pet the sweaty stuff. ;)
OK, that's my thoughts, now chin up, shoulders back, smile, and breathe....it's going to be just fine. Hugs....
Monday, January 23, 2012
TNBC Hero
Thursday, January 19, 2012
Army of Women is looking for you!
breast tissue is an indicator of risk. If you agree to participate, it will include a questionnaire,
pathology slides from your biopsy, and paraffin from your tissue.
Researchers are looking for 400 women in this study. Research is the only way to find a
cure for breast cancer.
• You have had screening mammograms performed
• You have NOT been diagnosed with breast cancer (including DCIS)
• You had a benign breast biopsy after January 2000
• You were NOT pregnant or breastfeeding when you had the benign breast biopsy
• You were NOT using birth control pills or menopausal hormone therapy when you had
• You have NOT tested positive for the BRCA 1 or BRCA 2 mutation (if known)
• You live in the United States
Wednesday, January 11, 2012
Sundown Tinting in Birmingham AL
Sunday, January 8, 2012
Happy New Year 2012
We did a lot of other things while he and his girlfriend were here. We made pottery, saw the Blue Man Group, went on an air boat ride, and watched movies (our favorite past time). We went and saw Sherlock Holmes - Robert Downey Jr AND Jude Law at the same time? YES!!! lol
Additionally, I nursed a muscle spasm in my back that is unlike anything I've ever felt before so I continued with physical therapy and that helped loosen the muscles up.
I have not done much research as of late because over the Christmas holiday, I learned of a friend going into hospice. She, too, is triple negative and has been such a fighter and good christian woman. She knows what is coming, sooner that she would have liked, but she looks forward to a peaceful heaven, and to greeting us all again one day. Me too. Anyway, her prognosis set me back a little bit, so I just didn't feel up to writing. My apologies.
I tell people that cancer was good to me. I know - CRAZY!!! Right? But in many ways, it was. It brought me back to my faith; it made both my family and friendships stronger - in a very real way; and it helped me become less vain. Every day, I can choose to be happy or not, and I choose to be ecstatic for having more time. Am I sick? Nope, not at all. I am two years NED. But I won't take one day for granted.
I want every moment with my children to be something they remember with a smile, or a laugh. I want my co-workers to know that I do care and I'm not just "performing", and even when I walk my dogs, I want to focus on their joy of just being with me. Right now, I have all three dogs and a kitten on me and yes, typing this is a challenge as the kitten chases the mouse.
Resolutions: I have given thought to a resolution as many do each year. This year, I think I would like to knock off another item or two on the bucket list and continue to live as if I'm dying. I mean, after all - no one gets out alive, right?
In closing, more often than not, we don't know how much time is left, but it's what we do with that time and the people we share it with that is so important. So come on, join me - do something today that makes you step outside your comfort zone, or check an item off YOUR list, or even just sit and quiet your soul and listen for God. He's still there, waiting for all of us.
Many blessings for a happy and healthy 2012.
Friday, November 18, 2011
Calendar is Complete!!
http://share.shutterfly.com/share/received/welcome.sfly?fid=f8ec47f73a1981d76276141d224b0f78&sid=0AcOGzJqzcNWjlg
You should be able to view it. Each woman in the calendar is a breast cancer survivor who offers a short statement on what helped her succeed. If you are interested in purchasing one of these, the cost is $15. Please let me know.
I had a wonderful time meeting the ladies and sharing with them. As much as we are all different, we have a great deal in common as well. One thing I have found is that much of what we think and feel after experiencing cancer is the same as the next person. We move on and try to live our lives as fully as possible knowing in the back of our minds that somewhere deep inside us, it remains, and could return at any time.
This being the week before Thanksgiving, I urge you to reflect on what you give thanks for and what you are grateful for in your life. What are your special memories, and if you were to write a book, what would you say. On the flip side of that, if someone were to write a book about you, how would that book read? Would you be proud of what others were reading about you? What can you do this Thanksgiving to make it that much more special for others around you - just in case. We never know what is in store for us and ya know what, it's not really about us anymore, it is about those who we love and wish to do well for and by.
That being said, here's a few idea's to help you make your Thanksgiving just a bit more special for family, friends, and yourself.
1. Read a Thanksgiving story with your family. If you are alone, read one that resonates especially with you.
2. If you have family and friends over for dinner, ask each person to recall a special memory and talk about it. It will create fond memories for everyone.
3. Go to church and praise God.
4. Go see a parade - or watch one on TV.
5. Invite someone in need into your home to share the day, or go to one of your favorite charity's and serve others.
When we help others less fortunate than ourselves, it often causes us to feel better about our own predicaments. I've said many a time here, I am blessed and very lucky because I am still alive. And while I am still alive, I want to make others laugh and smile....if only for awhile.
If I am not on here beforehand.....then here's to wishing you all a very blessed and Happy Thanksgiving. Hugs~
Monday, November 14, 2011
Skydiving - One More Check on the Bucket List!
I barely slept that night thinking I was going to jump 15,000 feet out of a perfectly nice airplane, and possibly to my demise. Holy crap! But.....why not? I always wanted to feel the wind "beneath my wings" so why not try it with my son! And let me tell you - as far as bucket lists go - PUT THIS ONE ON YOURS!
It was amazing!!!! Did I say amazing? I meant to say freaking fantastic!!! After almost wetting my pants when the plane took off (because precisely at that moment you realize there is no backing out), I was terrified on the plane, and at the door, but once I actually jumped with my awesome tandem instructor Cris, everything changed. It is an indescribable feeling, but I will try to explain it.
You know when you are dreaming and feel like you are falling and you shake and wake yourself up? It does not feel like that at all. LOL It is quite the opposite actually. You are indeed falling at 120mph towards the ground, and the wind is rushing through your ears and hair quite loudly as you try to grasp the magnitude of everything around you. With all that going on, you still almost feel like you are being pushed up from the wind, instead of actual free falling. We spun around in a few flips and circles and Cris even let me "fly" our parachute. Of course, when the parachute opened, I wasn't ready for that part, and *whoosh* it pulls you back....and then you just float. The whole thing lasted about seven or eight wonderful minutes and Cris, who was so awesome, touched me down as light as a feather, and I just walked right out of the harness (really!!) Having said that, if you are in Florida, I highly recommend Skydive Space Center in Titusville! I kid you not. I was so psyched. My adrenalin was still going at full speed several hours later.
Honestly, other than the initial boarding of the plane and looking out of the door before the jump, it was absolutely spectacular. So spectacular, that I do hope to do it again. Oh, and did I mention, that because Brad and I were jumping with the seasoned jumpers who had more than 20,000 jumps, they took us to 18,000 feet. Not that we would have hit the ground any harder (you're still going 120mph), you just get a longer ride.....ahhhhh.....
THAT was worth the check and check mark.....
Wednesday, November 2, 2011
Breast Cancer Risk vs. Heart Health??
Of course, their study doesn't tell women not to drink at all, I mean, why would it? It seems to me that these "doctors" getting grants (or whatever) and performing studies provide more confusion than conclusions.
I would like to know how long this particular study endured for Dr Wendy Chen be able to conclude that the alcohol intake "over a long period of time" (lifetime) increases the breast cancer risk". I listened to her on WKMG, Channel 6, this morning and was blown away by this PhD's responses. She never had any solid information, only "recommendations" such as "reduce the alcohol intake to several per week". Ok, I give - just what does that mean? I myself have an education and would be afraid to explain THAT sentence to anyone.
Quite frankly, if you can't tell, I am exhausted with studies and the conclusions that "everything" leads to breast cancer. Yep, it does. Now that we know that, stop saying it and scaring the crap out of women, young and old. We would benefit our communities much more if we focused on how we fix the breast cancer issue instead and find a flipping cure.
Finally, oh educated ones, seven surgeries later and waking up every day seeing a "new study" is actually old. I live with the fact of wondering if today will be the day IT returns, so, please stop screwing around with maybe's and possibilities and start providing real conclusions - or better yet - solutions - for breast cancer. Only then will women stop having to have their breasts removed from their chest or worse - dying.
Tuesday, November 1, 2011
A combo for TNBC?
One thing this DOES indeed say is this: Researchers are working diligently towards finding a cure, not just for a single type of breast cancer, but even for the most hardy cancers, and this is awesome. Triple negative patients generally have a shorter life span than does non-triple negatives, BUT, take heart, there are so many different treatments being formed for now that the cancer is actually beginning to respond to treatment. Ten years ago it didn't respond to anything and women just passed away.
As for me, I have been quite tired as of late, but I have learned to recognize when I am overdoing it, and I guess if I am honest with myself, either I haven't gotten enough rest each night, or I have gotten too much rest. Either way, I'm kind of blah, but I know it's a phase I just have to get myself out of.
I also cannot figure out why on earth I am craving chocolate. And Lord knows I have eaten my share of it too - shame on me - bad chocolate!! Never in my life have I craved chocolate.....and it sure isn't helping my cause any....... any idea's??
Have a great week and hang tough....people are working hard to take care of YOU!
Hugs~
Saturday, October 29, 2011
For ALL Women
The walk was scheduled to start at 0800 sharp, however, many participants got stuck in traffic, so it was delayed to allow extra time for everyone to begin together. This year, more than 7,000 people participated in this walk. That is phenomenal. Viera is not a huge place to begin with, but it sure has a lot of heart. The Avenues continue to support this cause with the American Cancer Society and Lexus and each year it just continues to grow. I don't know how much was raised yet, but I'm sure its over the 500K mark.
Every step is magical for me. I know I've said it a hundred times, and I will likely say it another hundred, but I KNOW how lucky I am to have each day, and I take none of it for granted. To be here and be able to walk along side these other survivors, and family members who walk for those who are no longer here, is completely humbling to me. I find it hard not to cry. Not from pain or poor experiences, but the richness in my heart that I feel every time I am among such a group of committed people. I feel.....lucky.
There are so many that I carried with me during my walk, and I prayed for each of you. I had my little list in my shirt. I always carry you with me, here or not. One day, there WILL be a cure. Of course, I also believe it will require environmental changes too.
Anyway, for all of you out there who continue your own battles, know that you are loved and prayed for. As a matter of fact, 7,000 people prayed for you Saturday morning....wow! Believe and hang tough. You CAN do this.
Hugs to all ~
Friday, October 21, 2011
A Third Walk
The calendar I have been working on for the last few weeks is almost done. We have one photo shoot left and it is complete. I am excited! We already have about 20 orders for them - and that doesn't include what I shall get for my own family. I designed them with one word in mind: HOPE. And then used a survivor for each month.
I'm thrilled to still be here to walk tomorrow. Each step for me is symbolic of the all steps taken to get here to this day, to walk with the other survivors. And, I am so grateful to have the opportunity to do so.....I hope to see you there....I am uploading a one of the hope pictures I recently took - I have to thank Trisha with TC Photography. She has done a wonderful job with the pictures. If you would like a calendar, they will be $15. All proceeds will go to Making Strides to help patients with appointments, mammograms, chemo, and other important necessities.
Friday, October 7, 2011
Two Years, Four Months, Five Days
I had never really been sick before then - I mean really sick, like what this unknown person on the other end of the phone was telling me, and every radar antenna I had went up and all defenses turned on. Just like that. I didn't know how, I didn't know where, I didn't even know what I needed to do, but I did know one thing - I was going to fight.
So, I have gone back on this day of surviving two years, four months and five days as a triple negative BC patient and re-read some of my posts. I also looked at the photographs again, wow, it's been an amazing journey I must say. I've made myself laugh at some of the things I wrote, and then with some of the others, well, I must apologize, for surely the medication was kicking in and my spelling wasn't the best. But, the reason I went back to look was to see if I had been keeping my promise to myself, and more importantly to YOU - have I reflected my "get up, dress up, and show up" attitude. I think I have, and Lord knows, I've been honest for sure. Sometimes too honest, but I refuse to lie to you. The truth is what it is and you deserve nothing less than that and my mutual respect. That is the mother and soldier in me.
Anyway, I thank Jesus, for helping me through this and giving me two amazing children and a sister who I could not have done this without.
Finally, it is October so reach out to every woman you know and remind her to get her mammogram. Do it verbally, on email, here on a blog, and on face book, too. "We" want more birthdays than ever before. Do you want a good dose of hope? I took a photo of a woman who was diagnosed with BC in 1976. The tumor was the size of her breast so she had a mastectomy.....and she is still with us. Now how's that??? You should be smiling now.... go ahead, you can do it. :)
Hugs~
Wednesday, October 5, 2011
It's On!
The women in the calendar will represent "HOPE" for others who are diagnosed with breast cancer in 2012 - and beyond. Some have been survivors for 9 months, some for 40 years. They come from all backgrounds and ethnicity's - just like breast cancer. I am so looking forward to the finished product...
There is only 17 days left before the Making Strides walk here. If you are able, please go to my page and donate. You can find it at:
http://main.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY12Florida?px=14996179&pg=personal&fr_id=35980
The funds raised help breast cancer patients with rides to their appointments, wigs and such, the Reach to Recovery program, and much more. Every day another woman is diagnosed with breast cancer, but the good news is that there are 2 million of us beating it because of continuing research. I have one word for that statistic: Yayness. :)
Have a great rest of your week. If you are fighting the fight - don't give up. There are so many of us out here rooting for you. We have done it, and so can you. Put one foot in front of the other and push through it - you CAN do this. Sure this is hard, but remember why God gave you knees, to get down on them and look up to him.
Anyway, my motto was (and still is) to get up, dress up, and show up. That, and putting on a little lip gloss makes me feel pretty good too.
Monday, September 19, 2011
How about a Calendar?
My co-worker, Trish, one of our CSI Techs at the PD, is also a photographer who does photography on the side via her own small company called TC Photography. We are looking for a sponsor at this time, and I am confident that we will come through with one.....So, I need YOUR help - if you know of someone who would be interested in one - being part of the calendar or two - sponsoring this wonderful adventure, then please send them my way!!
All good deeds are returned by good karma..... Have a blessed Monday everyone! Hugs
Friday, August 12, 2011
Making Strides - 2011 - Lucky Me!
Hello Everyone!
Yes, I am the lucky one because I am here today and I get to write to all of YOU out here in blog-land, and you have been important in my life whether you know it or not. You have been a teacher, a classmate, a friend, family.....someone who sent an awful joke to me, or an unknown friend who has sent me words of encouragement along my journey. For all of it, I thank you.
I know the economy is dreadful and in worse shape than most of us have ever seen, and it does no good to cast blame, it just is what it is. As a country, we will pick ourselves up, dust off our knees, and drive on, because that is what we do.
With regard to Making Strides for the American Cancer Society, I am opting for a different approach to implore you to support this cause. But first, let me tell you that because of your support last year I raised more than $2600 and my team, The SPICE RACK, raised over $4200! I am very grateful to everyone who donated. Thank you, thank you, thank you!
This year, I am requesting (praying) that everyone I know donate between $1-$5, (unless your company can afford to donate more to a charity, then please do so). From that angle I hope to raise a few hundred dollars this year. I know it is going to be tough, but this is not an option for me - it IS about survival.
As you know, this cause is very personal for me, and my sister Pam. Triple negative breast cancer patients are only just now surviving in the last 5-7 years because of research. Only a short 11 years ago, they didn't even know triple negatives like us existed and women just died because nothing helped them. They would go through heavy doses of chemo and radiation and all the medication and nothing; they wracked their bodies and died anyway. RESEARCH SAVES LIVES - I, my sister, and many other triple negatives are living proof of it.
BUT, this fight is not over because the cure has not been found. Until we find a cure, mothers, daughters, sisters, and wives will continue to die. I have seen women of all ages - 20s, 30s, 40s and up....and it is heartbreaking. I still weep for my friends who lost their lives to this disease way too young and will never meet their grandchildren.
So, today, I humbly ask you to please donate to my Making Strides campaign where your money WILL go to research and WILL help save lives.
I honestly believe that I am still here to talk to my own children and say goodnight to them because of research in the last ten years. That thought overwhelms me because I know how lucky I am and I don't take one conversation with my boys for granted; I savor every single moment.
I monumentally thank you for your time, your love, your guidance, and your friendship.......and as always, your generosity. To get to my Making Strides page, please copy the below link and paste in your browser:
Much love and long life~
Arla
Wednesday, July 27, 2011
ACS - Extreme Makeover - It could be YOU!
I was privileged to be one of the women selected for the makeover last year, and it was truly a blessing. This year, I hope to be the photographer so the ACS staff can go about their day and do the final touches for the opening ceremonies (at which those selected will be honored). As they run around doing last minute things, I hope to capture those special moments throughout the day of pampering as ladies (or men) are made over.
This will be my way of giving back to those wonderful, wonderful ladies at ACS who made me feel so special last year. I had a hard time holding back the tears, even with all of the lovely makeup.....
If you know someone - or - know someone who knows someone - please share this super opportunity with them. Share their story. Maybe they will be selected for an amazing day of much needed - and deserved - pampering.
hugs to all ~
Wednesday, July 13, 2011
Tattooing
Ms. Judy Newdom of Facecrafters in Sarasota, FL, did an absolute superb job. She used a variety of 5 or 6 colors, and the areolas sort of look 3-D. Although I and others who know me know my chest is not my natural born chest, Judy added the final artistic touches and I am very pleased. And get this, the two hours it took her to complete, she did at no cost. Some people are unbelievably giving and she is one of them. Judy is also a survivor and understands the complexities and emotions we go through.
I do not normally advertise for others here, but I am making an exception. Judy Newdom is truly a gift to the breast cancer community she serves. If you or your loved one is looking for areola tattooing or other permanent makeup such as eyebrows, eyeliners, or lip lining, please do yourself a favor and call her first at 941-351-1333. You'll be glad you did.
Thank you, Judy for your dedication to others and for helping me feel like a natural beauty again!
Thursday, July 7, 2011
Just My Thoughts Today
Surely he heard my cries because for all the days that followed, I knew HE knew what HE was doing and that I must trust in HIM. You have a choice with God, just as you do this disease. You can walk with HIM/it, or away from HIM/it. I chose to walk with HIM because as I've known all my life, I know he will carry me when I am weak.
I also found it imperative to keep a sense of humor. Trust me, aside from the gravity of my situation, there were also several jokes tossed around. That and my sister's falsey tossed into the pool...where it floated..and I laughed till I cried.
All in all, the days are not going to go by any faster or slower just because you have cancer. And, I bet you will be more grateful for each sunrise and each sunset that you get to enjoy. Take each moment as they come whether you feel great, or not so great. Part of this whole deal is that the treatment designed to heal our bodies actually makes us sick at first. Just roll with it and take it as a cue from your body that it is doing its job. That is all you can do.
When you are unsure if you can do this and get through it, trust me - YOU can, and you will. There are thousands of us out here, right here, sending you blessings. We do care about YOU and your cancer and we want you to get better.
Life isn't perfect but sometimes our society strangely acts as if it is supposed to be. If that were the case, we'd be in heaven already, right?? So, don't sweat the petty stuff and don't pet the sweaty stuff. ;)
OK, that's my thoughts, now chin up, shoulders back, smile, and breathe....it's going to be just fine. Hugs....